So apparently Dylan had such a fine time on our mommy/son date night last Saturday, that he decided we should do it all over again last night. Caleb was mad about something and was ornery and grabbed Dyaln's PICC line and yanked it out, not all the way, this time, but about 6 inches. Of course, Dylan was not completely innocent. He was on the trampoline at the time, while his medicine was in, a big no-no.
So then came the drive and there we were. Same bat time, same bat channel. Only this time luck did not accompany us on our date to the ER. The waiting room was pretty busy. When they finally saw us, they didn't know what to do with us. This time the Vascular Access team was definitely gone, and no one would touch him. They finally took a chest x-ray and determined that he wasn't in immediate danger of anything, and told us to come back on Monday when the VA office was open. Terrific., because I've got nothing else to do Monday than to drive all the way back there, AGAIN. We drove to Loma Linda last Saturday, Thursday, this trip, and now we'll be back Monday, and for another appointment this Thursday. That will be 5 times in a week and a half. That is like every other day!
But his picc line was still hanging out and flopping around, making me very nervous. I wouldn't leave until someone did something about that. Finally a nurse hesitantly taped it down, and sent us on our way, but not without my plopping down another $100 first.
On the way out, one of the nurses said she'd be working next Saturday night, and she'd look for us. How nice.
Dylan's timing is impeccable. Always Saturday night. Remember, Loma Linda is a Seventh Day Adventist hospital, and Saturday is their Sabbath.
I told Dylan next Saturday I am tying him down to his chair so he can't pull anything out. I just might do that.
What can I say, he loves me, and this was obviously an attempt to get some more alone time with Mom. I just wish he would get more creative in his date planning. I reminded him that if he is so desperate for some one on one mommy time, we could actually go do something besides a night in the ER, like, for the same amount of time and money, oh, lets say, Disneyland.
Disneyland would be so much more fun than a night in the ER. In fact, back when Dylan was in the hospital, and very, very sick, I promised him that when it was all over, we'd all go to Disneyland. It seemed pretty reasonable at the time. In fact, at the time, I was just praying that we'd ever get to the point when it really would all be over, and we'd still have Dylan to go to Disneyland with.
Unfortunately, thanks to these trips to the ER, cha-ching, and the medical bills that arrive daily in our mailbox daily, cha-ching, I really don't see how we are going to keep my promise. But he was so sick and in that moment of desperation, I would have promised him ANYTHING! Man, I am so glad I didn't promise him a puppy!
Of course, if I get too desperate, I might have to promise him a puppy not to pull his line out next Saturday night. Whatever it takes, right?
6 comments:
It seems like Loma Linda is your second home. You should have a bag by the front door packed and ready to go for these trips. At least he is feeling better and not in pain on the couch all the time. I guess you can't have it both ways, and this way is better.
As for disneyland. They have the 2-fer tickets now until June 3rd. For your family that would be $453, but you would get two days with in 30 days of each other. Also, if you email Disney ahead of time, you can get in on your birthday for free. You might want to go on the twins birthday, since that would be the cheapest day for you. That would be $335, if Luke is still under 3 at the time.
Another idea, have the boys do yard work or other types of jobs for neighbors or people at church. and save the money. Or if they are already getting allowance, let them save it up and pay for their own tickets. Then you would have to pay for only a few tickets out of your own pocket.
You could also try a cheaper place like Seaworld or Knotts, but I am not sure how much cheaper that would be.
One thing we did to save a lot of money was to bring a cooler full of food, and bags of chips, etc. Leave it in the car, and leave the park for lunch at the car. Then besides the tickets, gas is really the only other expense, because we would have eaten food at home anyway. Food at Disney is so expensive. If you don't spend the night, you save on hotel as well.
Just some ideas to throw around.
It is difficult, but you are doing a fantastic job. I am so proud of you and your family. Love you a lot.
Holy smokes. Before you know it you are going to have seats in the waiting room reserved just for you! I bet they know you by name. Sorry about that Shelly.
Well, you didn't give an exact time for going to Disneyland, right? So, um, it could mean at ANY point after he was better... or something like that...
I was going to suggest the same thing as EMac... if you go to the Disney website and sign up, you get into the park free on your birthday.
Here's hoping for a very uneventful upcoming Saturday.
"It's like déjà vu all over again."
--and again, and again. As my mom used to say, "Enough is enough!" Aren't you approaching the final countdown? That happy day is not far off when that boy will be free of his shackles and will be able to happily jump on the trampoline and spar with his siblings.
Oh, Sister V, I am so sorry!! I hope that this is all over soon too. Heavenly Father knows that you need a trial to keep you improving. Just keep that in mind.
Disney land is offering free entry on your birthday, and since Dennis ,Derek and Dylan all have birthdays in the beginning of June, maybe they'll even let you in since your in June you'll only have to pay for half the family.
Post a Comment